For the last couple of years I have scoured social media and the wider web for information about PDA & home education and found some real gems. To save others some leg work (or should that be finger work?) I thought it would be good to do a little round-up of the organisations, groups, blogs, pages and twitter accounts that I have discovered. There are lots more I am sure but these are the ones I personally found most useful so far.
These will likely change from time to time as I find more sites I love, so I will keep this blog post updated. If you have found a PDA or home ed related site you wouldn’t want to be without do feel free to pop it in the comments.
The PDA society first stop for info, they have a helpline do workshops for parents and professionals (highly recommended), they also have a twitter and Facebook page. https://www.pdasociety.org.uk/
The National Autistic Society They are great for advice around autism in general, they al. I found them particularly useful around rights concerning diagnoses and education for which they have specialised help. http://www.autism.org.uk/
IPSEA Offers independent parental special education advice, very good for EHCP plans and knowing your rights regarding schools and education. https://www.ipsea.org.uk/
Education Otherwise For information around home education including law and responsibilities. They also have information regarding events and resources, not PDA or SEN specific. https://www.educationotherwise.org/
AbilityNet – for advice and help around using technology in education for disabled people. They can even send someone around to help. https://www.abilitynet.org.uk/
Family Fund – grants for familys with disabled children in the UK. https://www.familyfund.org.uk/
Love PDA A sensitive and inspiring blog following gentle parenting strategies by a wonderful lady from New Zealand. https://lovepda.wordpress.com/
Stephs Two Girls Can’t get enough of Steph! She blogs with love, knowledge, compassion and a sense of humour. http://www.stephstwogirls.co.uk/
Peace with PDA positive blog, full of approaches and attitudes that can support a PDA child including tapping technics.
Sensational learning with penguin A lovely blog for those with younger home educated PDA children particularly. https://sensationallearningwithpenguin.com/
Respectfully Connected Journeys in Parenting and Neurodivergence is a group blogging project celebrating neurodiversity in families. Authors of this blog come from a wide range of backgrounds and between them have an enormous amount of parenting experience. http://respectfullyconnected.com/
Starlight and Stories – Written by a Mum with a child on the spectrum who is also a teacher. https://starlightandstories.com/
PDA Parenting blog of a Mum of 3 one of whom is PDA. Thoughtfully but honestly written. https://pdaparenting.com/
Notes on PDA lovely blog by very knowledgable parent full of great approaches to support a PDA child https://www.facebook.com/PeaceWithPDA/
Actually Autistic Blogs List Great resource, not specifically for parents but a really some really useful insights into what it means to be autistic – It is a comprehensive list of blogs by Actually Autistic bloggers, including some PDAers (which you can find by doing a text search on “PDA”). Please note I can not endorse each individual blog or blogger on this extensive list so you will need to use your own judgement in selecting which to read. https://anautismobserver.wordpress.com/
Quantum Leap – Written by Siena a 15 year old mentor for young people the spectrum. Great information on Dyslexia, Dyspraxia, Aspergers/ASD and bullying. I found this such a well written, supportive and inspiring site also one that is very assessible children/YP themselves. Also on twitter. https://www.qlmentoring.com/
PDA home education (pathological demand avoidance) – Great for general advice and support from other home educating parents with PDA children. I find this a very supportive page. https://www.facebook.com/groups/pda.home.ed/
PDA Global Group (Pathological Demand Avoidance) A support page for parents by parent of PDA children. There are also sister pages for different countries which you will find the links to through this one. This page has a data base of useful links and information available too. This page has members from a wide variety of countries with a wide variety of attitudes and approaches. https://www.facebook.com/groups/pdaglobal/
Peaceful Parenting Place for PDA Parents and Carers For supporters of gentle parenting techniques. A very supportive group with a strong emphasis on the needs of the child. Run by adult PDAers who are also parents. https://www.facebook.com/groups/374682919564570/
Home education and your local authority: help with dealing with officialdom – This is the place to go once you have de-registered or are about to for any legal or official issues surrounding home education for swift, personalised and accurate advice. https://www.facebook.com/groups/239232119524989/
Peace with PDA Lovely welcoming group offering support and tapping technics to help ease anxiety.
There are so any great ones so I am just going to sort them into PDA and home education and let you explore for yourselves.
PDA/autism related pages
PDA Bubble https://m.facebook.com/pdabubble/
Peace with PDA public page https://www.facebook.com/PeaceWithPDA/
Riko’s PDA Page https://www.facebook.com/RikosPDApage1/
Notes on PDA https://www.facebook.com/notesonpda/?ref=br_rs
Autistic not weird https://www.facebook.com/autisticnotweird/
Stephs Two girls https://www.facebook.com/stephstwogirls/
Sally Cat’s PDA Page https://www.facebook.com/SallyCatPDA/
Chloe me just me – kid youtuber – some of her great youtube vlog links shared here about what it is like to be a PDA child. https://www.facebook.com/chloemejustme/
Autism Discussion page https://m.facebook.com/autismdiscussionpage/
Home education related pages
Happiness is Here https://www.facebook.com/happinessishereblog/
I am quite new to twitter so I will be adding to this list I am sure. Many of he pages. organisations and bloggers also have twitter feeds (and or facebook pages) so just search their name to find them.
GrowingUpAustistic@LibbyAutism – inspiring young autistic adult
Cassandra Davies@Cassie_Davies – very proud mum of 5 3 ND’s and a son with suspected PDA.
Raising Wildflower Kids@kidwildflowers – just a beautiful blogger sharing her home ed journey (not autism or PDA related)
RainbowsR2Beautiful@rainbowsaretoo – mum and blogger with children on the spectrum. (some great blogs too).
Alis Rowe@curlyhairedalis – from the Girl with the Curly hair books about autism
PDA questionnaire/diagnoses indicator for adults –
PDA indicator questionnaire for children
PDA Resources a list of sites pages blogs and organisations relating to PDA