A few of my favourite sites – Online support and information I found helpful around PDA/autism and home education for parents.

For the last couple of years I have scoured social media and the wider web for information about PDA & home education and found some real gems. To save others some leg work (or should that be finger work?) I thought it would be good to do a little round-up of the organisations, groups, blogs, pages and twitter accounts that I have discovered. There are lots more I am sure but these are the ones I personally found most useful so far.

These will likely change from time to time as I find more sites I love, so I will keep this blog post updated. If you have found a PDA or home ed related site you wouldn’t want to be without do feel free to pop it in the comments.

ORGANISATIONS

The PDA society first stop for info, they have a helpline do workshops for parents and professionals (highly recommended), they also have a twitter and Facebook page. https://www.pdasociety.org.uk/

The National Autistic Society They are great for advice around autism in general, they al. I found them particularly useful around rights concerning diagnoses and education for which they have specialised help. http://www.autism.org.uk/

IPSEA Offers independent parental special education advice, very good for EHCP plans and knowing your rights regarding schools and education. https://www.ipsea.org.uk/

Education Otherwise For information around home education including law and responsibilities. They also have information regarding events and resources, not PDA or SEN specific. https://www.educationotherwise.org/

AbilityNet – for advice and help around using technology in education for disabled people. They can even send someone around to help.  https://www.abilitynet.org.uk/

Family Fund – grants for familys with disabled children in the UK.  https://www.familyfund.org.uk/

BLOGS

Love PDA A sensitive and inspiring blog following gentle parenting strategies by a wonderful lady from New Zealand.  https://lovepda.wordpress.com/

Stephs Two Girls Can’t get enough of Steph! She blogs with love, knowledge, compassion and a sense of humour.  http://www.stephstwogirls.co.uk/

Peace with PDA positive blog, full of approaches and attitudes that can support a PDA child including tapping technics.

Sensational learning with penguin A lovely blog for those with younger home educated PDA children particularly.  https://sensationallearningwithpenguin.com/

Respectfully Connected Journeys in Parenting and Neurodivergence is a group blogging project celebrating neurodiversity in families. Authors of this blog come from a wide range of backgrounds and between them have an enormous amount of parenting experience. http://respectfullyconnected.com/

Starlight and Stories – Written by a Mum with a child on the spectrum who is also a teacher.  https://starlightandstories.com/

PDA Parenting blog of a Mum of 3 one of whom is PDA. Thoughtfully but honestly written. https://pdaparenting.com/

Notes on PDA lovely blog by very knowledgable parent full of great approaches to support a PDA child https://www.facebook.com/PeaceWithPDA/

Actually Autistic Blogs List Great resource, not specifically for parents but a really some really useful insights into what it means to be autistic  – It is a comprehensive list of blogs by Actually Autistic bloggers, including some PDAers (which you can find by doing a text search on “PDA”). Please note I can not endorse each individual blog or blogger on this extensive list so you will need to use your own judgement in selecting which to read.    https://anautismobserver.wordpress.com/

Quantum Leap – Written by Siena a 15 year old mentor for young people the spectrum. Great information on Dyslexia, Dyspraxia, Aspergers/ASD and bullying. I found this such a well written, supportive and inspiring site also one that is very assessible children/YP themselves. Also on twitter. https://www.qlmentoring.com/

FACEBOOK GROUPS

PDA home education (pathological demand avoidance) – Great for general advice and support from other home educating parents with PDA children. I find this a very supportive page.  https://www.facebook.com/groups/pda.home.ed/

PDA Global Group (Pathological Demand Avoidance) A support page for parents by parent of PDA children. There are also sister pages for different countries which you will find the links to through this one. This page has a data base of useful links and information available too. This page has members from a wide variety of countries with a wide variety of attitudes and approaches. https://www.facebook.com/groups/pdaglobal/

Peaceful Parenting Place for PDA Parents and Carers For supporters of gentle parenting techniques. A very supportive group with a strong emphasis on the needs of the child. Run by adult PDAers who are also parents. https://www.facebook.com/groups/374682919564570/

Home education and your local authority: help with dealing with officialdom – This is the place to go once you have de-registered or are about to for any legal or official issues surrounding home education for swift, personalised and accurate advicehttps://www.facebook.com/groups/239232119524989/

Peace with PDA Lovely welcoming group offering support and tapping technics to help ease anxiety.

FACEBOOK PAGES

There are so any great ones so I am just going to sort them into PDA and home education and let you explore for yourselves.

PDA/autism related pages

PDA Bubble https://m.facebook.com/pdabubble/

Peace with PDA public page https://www.facebook.com/PeaceWithPDA/

Riko’s PDA Page https://www.facebook.com/RikosPDApage1/

Notes on PDA https://www.facebook.com/notesonpda/?ref=br_rs

Autistic not weird https://www.facebook.com/autisticnotweird/

Stephs Two girls https://www.facebook.com/stephstwogirls/

Sally Cat’s PDA Page https://www.facebook.com/SallyCatPDA/

Chloe me just me – kid youtuber – some of her great youtube vlog links shared here about what it is like to be a PDA child.  https://www.facebook.com/chloemejustme/

Autism Discussion page https://m.facebook.com/autismdiscussionpage/

Home education related pages

Happiness is Here https://www.facebook.com/happinessishereblog/

Twitter

I am quite new to twitter so I will be adding to this list I am sure. Many of he pages. organisations and bloggers also have twitter feeds (and or facebook pages) so just search their name to find them.

GrowingUpAustistic@LibbyAutism – inspiring young autistic adult

Cassandra Davies@Cassie_Davies – very proud mum of 5 3 ND’s and a son with suspected PDA.

Raising Wildflower Kids@kidwildflowers – just a beautiful blogger sharing her home ed journey (not autism or PDA related)

RainbowsR2Beautiful@rainbowsaretoo – mum and blogger with children on the spectrum. (some great blogs too).

Alis Rowe@curlyhairedalis – from the Girl with the Curly hair books about autism

Useful resources

PDA questionnaire/diagnoses indicator for adults –

https://dragonriko.wordpress.com/pda-test-for-adults/

PDA indicator questionnaire for children

https://www.pdasociety.org.uk/resources/extreme-demand-avoidance-questionnaire

PDA Resources a list of sites pages blogs and organisations relating to PDA

http://www.pdaresource.com/

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6 thoughts on “A few of my favourite sites – Online support and information I found helpful around PDA/autism and home education for parents.

  1. This is fabulous, really helpful to many. Thank you for listing me! xx

    Liked by 1 person

    1. I love your blog. I hope this is helpful to some on the long road to diagnoses and/or support x

      Like

  2. Great information thanks! 😊

    Liked by 1 person

  3. Would you be willing to add the Actually Autistic Blogs List (anautismobserver.wordpress.com) to this list? It is a comprehensive list of blogs by Actually Autistic bloggers, including some with PDA (which you can find by doing a text search on “PDA”).

    Liked by 1 person

    1. Thanks for the heads up, what a great resource I was happy to add it but have had to put a rider as I can’t check each bloggers content as there were so many. I look forward to exploring it more thoroughly.

      Liked by 1 person

      1. Thank you. Please let me know if you have suggestions for making the list more accessible and useful.

        Like

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